Levels of epilepsy care were developed by the National Association of Epilepsy Centers (NAEC). Level 4 epilepsy centers, such as the Epilepsy Center at UC San Diego, provide the highest level of care to people with epilepsy and other seizure disorders. Advanced imaging at UC San. That's why the National Association of Epilepsy Centers (NAEC) has accredited the Epilepsy Center at Nationwide Children's as a Level 4 epilepsy program—a. NAEC recognizes four levels of epilepsy care which are described in NAEC's Guidelines for Essential Services, Personnel, and Facilities in Specialized Epilepsy.
Overview Epilepsy is a central nervous system neurological disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness.
Request an Appointment at Mayo Clinic. References The epilepsies and seizures: National Institute of Neurological Disorders and Stroke. Accessed May 24, Evaluation and management of the first seizure in adults.
Centers for Disease Control and Prevention. Accessed June 13, Daroff RB, et al. Bradley's Neurology in Clinical Practice. Accessed May 5, Seizures and epilepsy in children: Classification, etiology, and clinical features. Aminoff MJ, et al. Accessed June 26, Ferri's Clinical Advisor Overview of the management of epilepsy in adults. Sudden unexpected death in epilepsy. Neurological diagnostic tests and procedures fact sheet. Haider HA, et al. Neuroimaging in the evaluation of seizures and epilepsy.
Initial treatment of epilepsy in adults. Initial treatment and monitoring. Crepeau AZ, et al. Management of adult onset seizures. Current and future clinical applications. Romanelli P, et al. Non-resective surgery and radiosurgery for treatment of drug-resistant epilepsy. Englot DJ, et al. Seizure outcomes in nonresective epilepsy surgery: External trigeminal nerve stimulation.
Mayo Clinic, Rochester, Minn. Fisher RS, et al. Operational classification of seizure types by the International League Against Epilepsy: Lundstrom BN, et al.
Chronic subthreshold cortical stimulation: A therapeutic and potentially restorative therapy for focal epilepsy. Expert Review of Neurotherapeutics. Van Gompel JJ expert opinion. Hirsch LJ, et al. Video and ambulatory EEG monitoring in the diagnosis of seizures and epilepsy. Britton JW expert opinion. Labiner DM, et al. Essential services, personnel, and facilities in specialized epilepsy centers — Revised guidelines. Financial planning and analysis. Mayo Clinic, Rochester, Minnesota.
Pediatric Epilepsy Early Intervention Neurontin side effects: How do I manage them? Demystifying epilepsy Extreme Endurance Athlete Infographic: It is likely that epilepsy surgery takes place at a few centers that are not members of NAEC or did not report data.
However, even a conservative estimate would be that 4, surgeries per year are performed in the United States. This suggests that surgery is underutilized because epidemiological data suggest that , to , people in the United States are candidates for epilepsy surgery.
The data on referral sources for epilepsy centers are difficult to interpret. The surveys showed that patients are referred to epilepsy centers almost evenly by primary care physicians and neurologists. However, the high numbers of primary care referrals may be due to the fact that many insurers require referrals to be formally generated by primary care providers even when it is a neurologist who makes the recommendation for referral.
The data overall suggest a shortage of epilepsy specialists. Waiting times to see a specialist at a center or to be admitted to the hospital for an epilepsy evaluation are 3 to 4 weeks. The data also show that many patients receive their ongoing epilepsy care at the center.
This means that epilepsy clinics rapidly fill up with returning patients and leave few appointments available for new patient evaluations. This is reflected in the average 3-week waiting time to see an epileptologist. As many of you know, the Institute of Medicine IOM is currently undertaking a review of the public health dimensions of the epilepsies. The brief survey should not take you more than a few minutes to complete, but if possible, please pull data from your center to complete the survey.
We recognize that some answers may be estimates of the typical experience at your center. Thanks in advance for completing the survey. We want to provide IOM with the best possible information about the state of epilepsy care in the United States and know that this data will help that effort.
Turn recording back on. National Center for Biotechnology Information , U. C Data on Specialized Epilepsy Centers: Total numbers are given below: On average, each center saw 1, unique patients with a diagnosis of epilepsy. On average, each center had 3, total outpatient visits where the patient was seen by an epileptologist.
Waiting time for a new patient to see an epilepsy specialist averaged 32 days, with a median of 21 days. Waiting time for an inpatient evaluation to the center's EMU averaged 25 days, with a median of 21 days. Of those patients admitted to the EMU for a pre-surgical evaluation, 29 percent went on to have epilepsy surgery. Referral patterns varied significantly across the centers surveyed.
Across all centers, the average percentage of patients referred from each source was as follows:. On average, two-thirds of patients How many patients with the diagnosis of epilepsy are seen in your center's outpatient clinic or office by an epileptologists annually unique number of patients, not patient visits?
What is the total number of outpatient visits with an epileptologist for a diagnosis of epilepsy including patients who are seen more than once per year that occur annually at your center? What are your major referral sources? Please provide a percentage for each, adding up to percent. What is the average waiting time in days for a new patient to get an appointment to see an epilepsy specialist at your center? What is the average waiting time in days for a patient to be admitted to your epilepsy monitoring unit for a routine admission?
What percentage of patients referred to your center for an epilepsy surgery evaluation go to have epilepsy surgery? What percentage of your patients are seen for long-term, ongoing epilepsy care rather than returned to the referring provider? What is the percentage of patients transferred back to the referring physician for further ongoing epilepsy care?
Living Well with epilepsy: Optional purchasing specifications for services related to epilepsy: A technical assistance document. Essential services, personnel, and facilities in specialized epilepsy centers: The evaluation and treatment of seizures. New England Journal of Medicine. Data on Specialized Epilepsy Centers: Other titles in this collection. The National Academies Collection: Reports funded by National Institutes of Health.
Level 4 Epilepsy Program
Overview. Epilepsy is a central nervous system (neurological) disorder in which brain activity becomes abnormal, causing seizures or periods. Our Epilepsy Center is recognized by the National Association of Epilepsy Centers (NAEC) as a Level 4 epilepsy center. Download the NAEC infographic for. Epilepsy is a brain disorder that happens when certain nerve cells in your brain misfire. It causes seizures, which can affect your behavior or the.